Founder
Matthew
J. Terry is a Hodgkin's disease survivor and Founder of CureHodgkins.com,
an online news magazine for patients and their families. Matt
established CureHodgkins.com to provide an internet alternative
to scientific clinical sites that ignore the human side of cancer.
Stories and columns by survivors hope to spread a message of
survivorship, empowering patients to take a positive approach to
treatment and living with lymphoma. Matt
has more than two and a half years of experience in the Hodgkin's
Lymphoma community, communicating with hundreds of patients every
year.
It
was Terry's vision that led to the creation of the Violet Ribbon
Campaign. Matt believes that the Hodgkin's disease community must
be strong and united in able to go after research for new forms of
treatment and improved quality of life. He also hopes to provide new
systems of communication between patients and survivors.
Matthew died on the morning of May 28th, 2002. His legacy lives on with the Violetribbon Campaign.
James McDermott
James McDermott is a Hodgkin's disease survivor. James was diagnosed with Hodgkin's disease in 1997 and has undergone extensive treatment. These include several regular and hi-dosage chemotherapy regimes, radiation therapy, an autologous stem cell transplant and an allogenic mini-Bone Marrow Transplant.
Throughout his treatments James has maintained his website, Hodgkins's Disease, where he communicates with HD patients and their loved ones. His website focuses on the personal side of dealing with cancer, recounting his experiences with the various therapies and how he and his family dealt with them.
James befriended Matt at the City of Hope where both had their mini-transplants and has recently joined the VioletRibbon.org team to help others with the disease. Throughout his treatments James has always maintained a positive outlook and hopes to perpetuate Matthew's vision of uniting the Hodgkin's Disease community. He looks forward to sharing experiences with you.
systems of communication between patients and
survivors.
James died
on March 3rd, 2004.
Jill Robinson, MD, MBA
Secretary/Treasurer, Director
jrobinson@violetribbon.org
Dr. Jill Robinson’s qualifications
and passion arise from working with cancer patients in the field of
women’s imaging. Experienced at starting several new ventures,
she was also the co-founder of the Southern California Eye
Institute,
a California non-profit corporation that helped educate thousands of
physicians in advanced eye surgery procedures. Turning her
enthusiasm to help form and shape the future of Violet Ribbon Campaign
satisfies her need to continue to contribute to the community through
awareness that will lead to added research and much needed new
treatment. Dr. Robinson is the mother of a pediatric
Hodgkin’s disease survivor.
Erin N. Fry
Director
efry@violetribbon.org
Ms. Fry is a Biology student at Scripps
College in Claremont, California. Erin recognizes the importance of
the emotional aspect of cancer treatment and hopes to expand
communication between patients and survivors, as well as support for
families and caregivers. Erin organized the Marrow Today Life Tomorrow
Bone Marrow Drive last year in Southern California. Ms. Fry interest
in Hodgkin's disease came while she was a main support in the
treatment of a close friend.
